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Autonomic Dysfunction and Daily Life
I get a lot of search engine topics relating to how dysautonomia affects daily life. I’ve decided to write about how it affects me, and why I’m disabled by it. This in no way is a comprehensive...
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The Social Implications of Dysautonomia
It’s so embarrassing to have physical reactions to relatively non-threatening stimuli. My autonomic system has a very itchy trigger, and I have to limit what I expose myself to in order to avoid a...
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Turning 50… and Already On Medicare For Six Years
I turned 50 years old today. I can’t figure out where the time went ! I certainly don’t feel ‘old’, and think that 50 is the new 30, even with the physical limitations I’ve had for years. I’ve never...
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It’s Been A Bad Few Months…
I’m so frustrated with the increase in limitations over the last few months, especially with my grandma not doing well (and wanting to see her). I haven’t said a lot recently, but it’s not because...
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Why Handicapped Parking Spaces Matter… Even If I “Look” OK
To look at me, I probably don’t look ‘disabled’- or ‘that bad’. I have all of my limbs, don’t use a cane because of vision issues, am not in a wheelchair all of the time (though I will have a...
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My Legs Are Retiring Part-Time … Wheelchair Will Be Here Next Week
This week, I went to my doctor’s office so she could do the ‘face to face’ appointment required to order a wheelchair for me. Normally I detest MD appointments (leaving home is painful- the docs are...
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Feeling My Body Fail
This has been a rough six months on top of a weird twenty years. I’d learned to deal with diabetes, fibromyalgia, chronic pain, degenerative disc disease, nocturnal seizures (left temporal),...
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Ramblings of 2015
Here it is… New Year’s Eve. Getting ready for 2016. It’s been a bumpy 2015, though I realize I still have a lot to be thankful for. A lot has happened. A few things are still being diagnosed....
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